So some of you may know that I had a 2nd surgery 4 days after my Laparoscopy for Endo & Adeno. However many of you did not know why.
April of this year I began noticing issues swallowing, extreme fatigue, hair thinning and more. I had also noticed that my neck started to get larger on one side. I had always had a small lump in my neck but it had gotten larger. So I decided I needed to get my neck seen. I immediately made an appointment with my primary care physician on May 2, 2013. There he did a physical examination of my neck. Right away he felt a large lump where my thyroid was. He said that I needed to get a Ultrasound as soon as possible. He also gave me a referral to see an Endocrinologist.
On May 16, 2013 I had my Thyroid ultrasound appointment. Of course the technician didn’t give me any results at my appointment. A few weeks later I received an appointment in the mail to see my Endocrinologist. My appointment for a Fine Needle Aspiration(FNA) was set for August 2, 2013. Friday the 2nd came and I arrived at my appointment. Sitting in the waiting room I wasn’t very nervous at all. My fiance, mother and nephew were with me. I remember my nephew Cayden playing with his toys and the sound of his laughs. It never occurred to me that I a few months later that that would be the moment where my life would changed.
At that very appointment I met my Dr. Immediately I could tell she was extremely sweet and caring. She spoke to me for a bit about my symptoms and my blood work. She told me that my ultrasounds results revealed a large tumor in the left side of my thyroid. She said that my thyroid function was normal and that thyroid masses were common and many turn out to be nothing. She walked me over to a small room with a examination table and a ultrasound machine. I was put onto the table with my arms crossed over my chest. She applied some cold jelly for the ultrasound. With that she could see my nodule clearly. Right away she was confused by what she saw. Apparently my nodule had extremely defined walls and was completely solid, Something my doctor had never seen. She removed 4 samples of my thyroid nodule cells.
14 days after my biopsy on August 16, 2013 I received a call from my Endocrinologist. She started off letting me know that my pathology report was not 100% clear. She said that I had Thyroid Cancer but that the type is either rare or mixed celled. At that point I heard nothing else before I said goodbye and hung up the phone. Tears went flowing for my few days following that call. Different emotions came over me throughout those few days. Everything from anger to sadness took place inside me.
Stay tuned for my next post where I will go further into details on surgery and what led to it.
If you would like to donate & support my fight against Thyroid Cancer please click on the link below!
It has come to my attention that many Endo Warriors do not know what Adenomyosis is. Honestly I was one of them until a few weeks ago when I was diagnosed with this disease during a laparoscopy. I want to take the time to bring much needed awareness to this disease. I have suffered from Endometriosis along with Adeno for many years without knowing.
Please take the time to read this short breakdown on what Adenomyosis is. If you would like to know more please don’t hesitate to leave a comment!
What is Adenomyosis?
Adenomyosis is a condition in which the Endometrium(uterine lining) implants inside the muscular wall(myometrium) of the uterus. This causes the Endometrium to become stuck in the wall of the uterus with no way to exit. The Endometrium can be localized to one section of the uterus or become spread all over.
Adenomyosis is NOT the same as Endometriosis! However most women that have Adenomyosis ALSO have Endometriosis. Just like Endometriosis the cause of Adenomyosis is not known. Adenomyosis occurs most often in childbearing ages. For most suffers it often occurs after having a child. For most patients Adenomyosis is no longer an issue after reaching menopause. However the condition is ONLY curable by Hysterectomy.
Although Adenomyosis is not life threatening it is a very difficult condition to be forced to live with.
What are the symptoms of Adenomyosis:
- Severe Pain & Cramping(often knife-like pains).
- Lower abdominal pressure.
- Tender lower abdomen.
- Bloating of the abdomen.
- Passing clots during menstruation.
- Heavy and/or prolonged bleeding during menstruation.
- Breakthrough bleeding between periods.
- Pain that worsens as you age.
- Pain during intercourse.
- Cramping throughout your cycle.
- Enlargement of the uterus.
However some women with Adenomyosis have little to no symptoms at all!
How is Adenomyosis Diagnosed?
Unfortunately the only sure way to diagnose Adenomysosis is through a Hysterectomy. This is where the uterus is removed and then taken apart and it’s cells are tested for Endometrium cells. However recent technology have come a long way as far as imaging is concerned. Things such as an Ultrasound or MRI make it possible for a doctor to see Adenomyosis. It is also very possible for your doctor to detect during a physical examination. Be careful that Adenomyosis is not confused for Uterine Fibroids which have similar symptoms as they require different treatments.
What treatments are there?
Because there is no cure for Adenomyosis other than Hysterectomy there aren’t a lot of options.
However here are a few
- Heating Pad for Cramping.
- OTC medications.
- Anti Inflammatory medications(NSAIDS).
- Hormone Therapy.
- Presacral Neurectomy(PSN).
- Uterine artery embolization.
- Endometrial ablation.
If you suspect Adenomyosis please consult your physician for the best plan of action for your care!
This Endo Girl,
I am so sorry that I have not put out a blog post in almost 2 months now! I recently had a second surgery since my Laparoscopy for Endometriosis. This recent surgery is NOT related to my Endometriosis at all! I am now preparing for a third surgery on November 1st which will hopefully be my last. I will be doing a few blog posts on my recent health battle as soon as I am able. Please be as patient as you can with me! Very soon I will be uploading “My Endo Journey: Surgery update 2 months out”! If you are interested in knowing how my surgery went please “follow” me and you will get an email when it’s live.
I thank you all so much for the support!
This Endo Girl,