So some of you may know that I had a 2nd surgery 4 days after my Laparoscopy for Endo & Adeno. However many of you did not know why.
April of this year I began noticing issues swallowing, extreme fatigue, hair thinning and more. I had also noticed that my neck started to get larger on one side. I had always had a small lump in my neck but it had gotten larger. So I decided I needed to get my neck seen. I immediately made an appointment with my primary care physician on May 2, 2013. There he did a physical examination of my neck. Right away he felt a large lump where my thyroid was. He said that I needed to get a Ultrasound as soon as possible. He also gave me a referral to see an Endocrinologist.
On May 16, 2013 I had my Thyroid ultrasound appointment. Of course the technician didn’t give me any results at my appointment. A few weeks later I received an appointment in the mail to see my Endocrinologist. My appointment for a Fine Needle Aspiration(FNA) was set for August 2, 2013. Friday the 2nd came and I arrived at my appointment. Sitting in the waiting room I wasn’t very nervous at all. My fiance, mother and nephew were with me. I remember my nephew Cayden playing with his toys and the sound of his laughs. It never occurred to me that I a few months later that that would be the moment where my life would changed.
At that very appointment I met my Dr. Immediately I could tell she was extremely sweet and caring. She spoke to me for a bit about my symptoms and my blood work. She told me that my ultrasounds results revealed a large tumor in the left side of my thyroid. She said that my thyroid function was normal and that thyroid masses were common and many turn out to be nothing. She walked me over to a small room with a examination table and a ultrasound machine. I was put onto the table with my arms crossed over my chest. She applied some cold jelly for the ultrasound. With that she could see my nodule clearly. Right away she was confused by what she saw. Apparently my nodule had extremely defined walls and was completely solid, Something my doctor had never seen. She removed 4 samples of my thyroid nodule cells.
14 days after my biopsy on August 16, 2013 I received a call from my Endocrinologist. She started off letting me know that my pathology report was not 100% clear. She said that I had Thyroid Cancer but that the type is either rare or mixed celled. At that point I heard nothing else before I said goodbye and hung up the phone. Tears went flowing for my few days following that call. Different emotions came over me throughout those few days. Everything from anger to sadness took place inside me.
Stay tuned for my next post where I will go further into details on surgery and what led to it.
If you would like to donate & support my fight against Thyroid Cancer please click on the link below!
Today marks 5 days until my life changing laparoscopy surgery with The CEC! I didn’t even realize it until today that I had forgotten all about blogging for my 2 week Pre Op mark. I may end up doing a “make up” blog so that later on I can see where my head was at that time.
Today I can tell you that I am so excited and so ready for this surgery to come! I am so grateful that in just 7 short days I will get real answers as to why I am always in so much pain. Since I will be having a Chromotubation(Like a HSG) I admit that I am completely terrified that I may have fertility issues from never being treated in the past 13 years. But I am willing to attack them head on and fight for my right to be a mother! I am not claiming those thought but I also don;t want to ignore the possibility.
Another thing that has me completely nervous is the fact that I woke this morning with an awful head cold! Sneezing, sore throat, swollen lymph node and all! I immediately increased my Vitamin C from 3,000mg daily to 4,000mg daily. I started drinking loads of water, tea and ginger ale. I am hoping that this will help my system to knock it out a bit quicker. Normally my colds only last 3-5 so I am praying it is gone before Sunday night! I have been waiting for this surgery for 13 years…67 days of which it was ACTUALLY scheduled : ). I would be heartbroken if it were canceled and postponed!
I have also had what I think to be the start of my first cycle in 3 months come on Saturday. I woke up with my usual Endo period symptoms…nausea, diarrhea, cramping, heavy bleeding and back pains. I had some clotting as well which I haven’t really had much of when I was on the Depo Provera shot which officially left my system on/around June 29th. Of course I couldn’t take any pain or nausea meds because my surgery is so close and I cant have blood thinners. I ended up mixing a red rock ginger ale with a Seagram’s ginger ale which helped tremendously with my nausea. I took some Tylenol for the pain which did diddly squat for my pain. I got out my amazing 13 years old trusty heating pad which helped a lot.
I am hoping this is a sign that my body is ridding me of the awful drug that is Depo Provera and bringing back my cycles. I am not excited about the pain but I am excited to not be irregular or bleeding for 23-30 days at a time. I am just so ready for the possibility that my pain will no longer exist soon after surgery. I know that excision isn’t a guarantee but for me I am hopeful! I can no longer sit around a watch my life and all my potential to be happy pass by me! Soon on August 12th, 2013 I will have the chance to get my life back!
I am feeling amazing!!!
Today June 13, 2013 marks 4 weeks until my excision surgery! I am exactly 30 days out from surgery!
I had not idea time would start to fly like this. I am glad that I have OCD and started prepping as soon as I did. I am extremely happy to say I have absolutely nothing left on my Pre/Post Op Surgery list! My hospital bag is already packed and my home care supplies have been set up. I will do a blog post soon with my recommendations for your hospital bag and home care supplies. I will also be doing a post with tips on the bowel prep & post op ailments that can happen once you are home.
On another note….I logged in today to find my last post was 7 days ago…I didn’t even realize that. Crazy thing about having Endometriosis is that life can change in seconds! My pain went from moderate to intense in a matter of hours! I pretty much sat in bed for 6 days straight except to go to the restroom or eat. My partner has been working overtime to save a few bucks just in case any other bills/emergencies come up before or after surgery. I realize I am really lucky to have her support.
Only issue we are dealing with now is trying to figure out my sleeping arrangements prior to surgery. We don’t own a recliner and our futon is way to firm and low to use as an option. Our current bed is a full and very hard with broken springs. She is also a wild sleeper so there isn’t much room for someone with stitches to recover LOL. I would not want to be sleeping and to be jolted by a knee or elbow. In order to prevent this very possible disaster we want to get a queen bed. We had saved for a queen size memory foam bed but that money has had to go else where. That leaves us with 30 days to figure out where I will sleep.
I also just realized that my ID expired June 30th and I have to get a new one. I have 30 days to do so for surgery but 20 before I need it for a FNA(Fine Needle Aspiration) of my Thyroid on August 2nd. I am starting to stress a bit and worry but I know it will all work out! I am sure it will all get done…I am making it a priority starting next Monday.
I am so excited for my new life….new me will be born on August 12th 2013.
Today July 5, 2013 marks 37 days out! I am still relaxed and at ease about surgery. I am just sitting back and waiting now. I have been getting my room organized and in order. My cat sheds like no other so I dust a few times a day…guess it gives me something to do ehh?!
I took my last of 21 Estrogen pills today and of course the break through bleeding started. I figured that it would once the Depo Provera Progestin was able to take over again. I am not upset because at least now those horrible Estrogen induced cramps will stop. I have also been getting loads of pain in what feels like my ovaries so I am hoping that goes away as well.
I contacted my surgeon to ask if I didn’t restart the Estrogen would it interfere with my surgery. Thankfully I got a reply that it would not interfere and that the bleeding is fine. I am so relieved to hear that. I just want my cycles to return to normal and all of these synthetic hormones out of me!
As of July 29th I will be OFFICIALLY DONE with Depo Provera! I can’t tell you how happy I am to say that..well type it! I have been drinking loads of water and detox tea to help my liver filter it all out a bit faster. I have no idea if it works or not but hey I tried!
Anyone have an tips to offer me?
Today July 3, 2013 marks 39 days out! The days are going past and I am still calm…I didn’t really expect this. I have had lots of anxiety up until a few days ago. I guess seeing that my surgery is 100% happening and being prepared has helped a lot. Now it’s just sit and wait it out!
I don’t have much to say today other than I feel like crap!! I have been getting the worst stomach pains. Like cramping in my intestines or deep in my bowels. The ability “to go” hasn’t come in nearly 8 days now. Boy does that suck!
My bowel issues are the one thing I hope to be able to say buh-bye to in a few days! I am hoping I will not need a bowel resection but if I do I am praying for no ostomy bag. My grandmother had one and I can tell you right now she suffered with it. It was by no means easy for her to go out or be more than 10 mins from a restroom to change her bag.
All in all if my surgeon believes that an ostomy bag or something similar is right for me then that is ok with me. I will not refuse or reject the best way to move on with my life.
All I can do right now is have faith and to pray that my surgeons will be able to help me!
Please pray for me at 11 am on Monday August 12th! ❤
Today July 1st marks 41 days til surgery! We are almost at 5 weeks and 4 days out! It is closer than I thought it was! The other day I didn’t even realize we had already passed 6 weeks Pre-Op!
I have realized that many of the women that I know that have Endo rarely if ever have enjoyable intercourse with their partners. I have also noticed that lots of women blame themselves as to why they can not have sex. It saddens me that our bodies can control and prevent such important parts of our romantic relationships! On top of that is the shame and embarrassment that we hold in not wanting to talk about the painful side of what should be pleasurable!
So lately I have noticed that intimacy for my partner and I isn’t happening as much as we would like. For one it has been way too painful during intercourse since I have scarring on my ligaments and ovaries. Two because I have constant cramping in my uterus which I am hoping isn’t Adenomyosis! My partner gets really sad when we attempt to be intimate and have to quit because it hurts. She thinks it is her fault and that she is the reason I hurt but we both know different. Also sometimes I feel guilty because we can not have sex as often as I am sure she would like or need.
Just a few months ago I rarely ever had pain with sex unless it was a week before my periods was due. Other than that I never really noticed any discomfort let alone pain with penetration. I am starting to think that it is because my Endometriosis has been so active due to hormonal imbalances and it being untreated for 13 years now. Yes I have done birth control for 1.5 years when I was 15-16. However since I have only used pain management to treat my Endo. I am sure that this has let Endo grow deeper and implant and scar more places in my pelvic floor.
I have been looking into trying Pelvic Floor Therapy to help but I have not been able to find a clinic in Atlanta. So far all that helps is taking a pain killer before and after sex. But even then we still have to be extremely careful. We have started using a lubricant to help with friction discomfort and that does help a lot.
Anyone have suggestions for PFT? Or any other methods that could help us? Please feel free to leave a comment below or email me at lala.life.with.endo at gmail We would really appreciate it!
Today June 30th marks 42 days until surgery! I am almost at 5 1/2 weeks Pre Op! OMG it is really becoming real! I am having surgery in a little over 6 weeks! Okay I am back now!
My niece Leona’s 2nd birthday party was today and we had a blast! She looked like a divine princess in her birthday dress! We ate loads of hamburgers, hot dogs and we sang happy birthday. She opened all her gifts and of course only liked one and ran off to play….Kids!! I played Baseball with my nephews Cayden, Trison & Timothy! Cayden is the youngest of the boys at 3 years old , Triston is 5 and Timothy is 8. None of us truly knew how to play but it was all in good fun. Can I just say how badly I hurt after that but it was worth it.
Oh yea my partner Christina & I FINALLY got all of the Pre/Post surgery supply list done today! We added nausea meds, anti acids and stool softeners to out checked off list. We also picked up all my bowel prep supplies which includes: MiraLAX 14dose, 4 Dulcolax laxative tablets and 1 fleet enema. Yep this is going to be a party!
Christina is planning on setting up the bathroom really nicely in preparation for the night before surgery. I get to watch TV/Netflix from the hallway closet just so I won’t have to go far from the restroom. You never know when you may get the urge to go : ). We are making a comfy bed in the closet as well just in case the prep wakes me up in the middle of the night. Our bedroom is a ways away from our bathroom and we don’t want to chance it LOL. I will stock the hall closet with all my necessary things like gingerale, gatorade, fragrance free wipes and any other things I may need for the bowel prep.
Doesn’t it sound like I am prepping for a fun sleepover or party? I wish it were the case! 🙂 But oh well I will do what I have to do before surgery day!