What is Adenomyosis(Adeno)?

It has come to my attention that many Endo Warriors do not know what Adenomyosis is. Honestly I was one of them until a few weeks ago when I was diagnosed with this disease during a laparoscopy. I want to take the time to bring much needed awareness to this disease. I have suffered from Endometriosis along with Adeno for many years without knowing.

Please take the time to read this short breakdown on what Adenomyosis is. If you would like to know more please don’t hesitate to leave a comment!

What is Adenomyosis?

Adenomyosis is a condition in which the Endometrium(uterine lining) implants inside the muscular wall(myometrium) of the uterus.  This causes the Endometrium to become stuck in the wall of the uterus with no way to exit. The Endometrium can be localized to one section of the uterus or become spread all over.

Adenomyosis is NOT the same as Endometriosis! However most women that have Adenomyosis ALSO have Endometriosis. Just like Endometriosis the cause of Adenomyosis is not known. Adenomyosis occurs most often in childbearing ages. For most suffers it often occurs after having a child. For most patients Adenomyosis is no longer an issue after reaching menopause. However the condition is ONLY curable by Hysterectomy.

Although Adenomyosis is not life threatening it is a very difficult condition to be forced to live with.

What are the symptoms of Adenomyosis:

  • Severe Pain & Cramping(often knife-like pains).
  • Lower abdominal pressure.
  • Tender lower abdomen.
  • Bloating of the abdomen.
  • Passing clots during menstruation.
  • Heavy and/or prolonged bleeding during menstruation.
  • Breakthrough bleeding between periods.
  • Pain that worsens as you age.
  • Pain during intercourse.
  • Cramping throughout your cycle.
  • Enlargement of the uterus.

However some women with Adenomyosis have little to no symptoms at all!

How is Adenomyosis Diagnosed?

Unfortunately the only sure way to diagnose Adenomysosis is through a Hysterectomy. This is where the uterus is removed and then taken apart and it’s cells are tested for Endometrium cells. However recent technology have come a long way as far as imaging is concerned. Things such as an Ultrasound or MRI make it possible for a doctor to see Adenomyosis. It is also very possible for your doctor to detect during a physical examination.  Be careful that Adenomyosis is not confused for Uterine Fibroids which have similar symptoms as they require different treatments.

What treatments are there?

Because there is no cure for Adenomyosis other than Hysterectomy there aren’t a lot of options.

However here are a few

  • Heating Pad for Cramping.
  • OTC medications.
  • Anti Inflammatory medications(NSAIDS).
  • Hormone Therapy.
  • Presacral Neurectomy(PSN).
  • Uterine artery embolization.
  • Endometrial ablation.
  • Hysterectomy.

If you suspect Adenomyosis please consult your physician for the best plan of action for your care!

This Endo Girl,

-LaLa

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My Endo Journey begins: 41 days out til surgery!

Today July 1st marks 41 days til surgery! We are almost at 5 weeks and 4 days out! It is closer than I thought it was! The other day I didn’t even realize we had already passed 6 weeks Pre-Op!

I have realized that many of the women that I know that have Endo rarely if ever have enjoyable intercourse with their partners. I have also noticed that lots of women blame themselves as to why they can not have sex. It saddens me that our bodies can control and prevent such important parts of our romantic relationships! On top of that is the shame and embarrassment that we hold in not wanting to talk about the painful side of what should be pleasurable!

So lately I have noticed that intimacy for my partner and I isn’t happening as much as we would like. For one it has been way too painful during intercourse since I have scarring on my ligaments and ovaries. Two because I have constant cramping in my uterus which I am hoping isn’t Adenomyosis! My partner gets really sad when we attempt to be intimate and have to quit because it hurts. She thinks it is her fault and that she is the reason I hurt but we both know different. Also sometimes I feel guilty because we can not have sex as often as I am sure she would like or need.

Just a few months ago I rarely ever had pain with sex unless it was a week before my periods was due. Other than that I never really noticed any discomfort let alone pain with penetration. I am starting to think that it is because my Endometriosis has been so active due to hormonal imbalances and it being untreated for 13 years now. Yes I have done birth control for 1.5 years when I was 15-16. However since I have only used pain management to treat my Endo. I am sure that this has let Endo grow deeper and implant and scar more places in my pelvic floor.

I have been looking into trying Pelvic Floor Therapy to help but I have not been able to find a clinic in Atlanta. So far all that helps is taking a pain killer before and after sex. But even then we still have to be extremely careful. We have started using a lubricant to help with friction discomfort and that does help a lot.

Anyone have suggestions for PFT? Or any other methods that could help us? Please feel free to leave a comment below or email me at lala.life.with.endo at gmail We would really appreciate it!