My Endo Journey begins: 42 days out til surgery!

Today June 30th marks 42 days until surgery! I am almost at 5 1/2 weeks Pre Op! OMG it is really becoming real! I am having surgery in a little over 6 weeks! Okay I am back now!

My niece Leona’s 2nd birthday party was today and we had a blast! She looked like a divine princess in her birthday dress! We ate loads of hamburgers, hot dogs and we sang happy birthday. She opened all her gifts and of course only liked one and ran off to play….Kids!! I played Baseball with my nephews Cayden, Trison & Timothy! Cayden is the youngest of the boys at 3 years old , Triston is 5 and Timothy is 8. None of us truly knew how to play but it was all in good fun. Can I just say how badly I hurt after that but it was worth it.

Oh yea my partner Christina & I FINALLY got all of the Pre/Post surgery supply list done today! We added nausea meds, anti acids and stool softeners to out checked off list. We also picked up all my bowel prep supplies which includes: MiraLAX 14dose, 4 Dulcolax laxative tablets and 1 fleet enema. Yep this is going to be a party!

Christina is planning on setting up the bathroom really nicely in preparation for the night before surgery. I get to watch TV/Netflix from the hallway closet just so I won’t have to go far from the restroom. You never know when you may get the urge to go : ). We are making a comfy bed in the closet as well just in case the prep wakes me up in the middle of the night. Our bedroom is a ways away from our bathroom and we don’t want to chance it LOL. I will stock the hall closet with all my necessary things like gingerale, gatorade, fragrance free wipes and any other things I may need for the bowel prep.

Doesn’t it sound like I am prepping for a fun sleepover or party? I wish it were the case! 🙂 But oh well I will do what I have to do before surgery day!

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My Endo Journey begins: 43 days out til surgery!

So today June 29th marks 43 days out til surgery! I am so freaking excited I added a countdown widget to the front of my Android Phone. Yep you read that right…it wasn’t enough that I blog about it day to day but I had to add a widget that counts down to the days/hours/minutes/seconds up until surgery! Call it what you will but it has helped to ease my mind quite a bit!

Any ways so today I woke up in not as much pain but I do still have some discomfort. It is mostly my back pain that hurts the most today. I think it has more to do with my bed needing to be replaced that my Endo or the Estrogen I am on. I do have scoliosis so I am sure that that combined with a hard/bumpy bed isn’t a great idea! Lately I have been extremely tired and falling asleep around 10 pm & waking around 10 am and still feeling tired! I know that it has a lot to do with my body not resting well.

Christina and I are still shopping for a few things for my home recovery post op. Things on our list for home recovery are sheets in a dark color in case I bleed from my incisions. As well as a new bed & pillows!  I have been on Amazon looking at Lucid memory foam beds today & I found an amazing bed. Now I just have to find the cash for it! : ) We have also been talking about getting new bedding and pillows. A friend of mine told me about nomorerack and we found some great 1600 count sheets for under $40…amazing steal! I am hoping to be able to afford to redo our entire room before surgery! If not tax time isn’t too far off and I can always ask for gift cards for Christmas: )

The only bummer about today is that a close friend of mine came into town from North Carolina for a day. The kicker here is that I was too sick to even say yes to going out with her. That is the only thing about Endo & Chronic Pain that really gets to me. The lack of a life that I get to live! It has been more than a year and a half since I have seen a bar or friends. Yes I get to chat with them online but you will never see me in photos with my friends having FUN. I mean what is fun again?!

This is exactly why these next 43 days can not go by any faster!

Bring on a better quality of life!

My Endo Journey begins: 44 days out til surgery!

So today June 28th I am now 44 days out!!! I am so happy to see that the days are passing by faster than I had realized! I am nervous still but I am getting more anxious to get this done and improve my overall quality of life!

I am sitting here bored as heck while Christina is at work! Of course I am in loads of pain from the Estrogen pill I just took 10 mins prior to deciding to blog today! My head has been hurting lately along with these random knee pains. They kinda feel like deep aching pains like someone is hitting my knees with hammers. I started taking blood thinners just in case is blood clotting from the estrogen pills. I do not want to chance getting blood clots prior too surgery!

I have absolutely nada planned today except for catching up on some TV shows that I have missed. I am thinking of getting the rest of my Pre/Post surgery supply items this weekend but I am not sure yet! I have nearly everything and I have crossed off some things I doubt I will need/use. I am sure that will help our pockets a bit since prepping can get really expensive! I am hoping to get to use coupons/rebates on the rest of the items on our list. Maybe I will be in less pain on Sunday and can get some shopping done!

That’s it for today’s post since I don’t have much else to talk about besides my cat loves to lay on the keyboard every time I go to blog. I think you guys make her jelly : )

Aren’t you jealous of my amazingly exciting life?! Yea ok I doubt it but I had to ask!

How Endo & I met: Part II

At 17 years old my mother told me I would no longer be eligible for Medicaid and that I would lose my OBGYN. I didn’t know if I should be more upset that my awesome doctor would no longer be mine. Or if I was more upset that the pain would soon return. I remember realizing that my last pack of birth control was near its sugar pills and that my cycle was near. I remembered my OBGYN telling me that after the BC was no longer in my system my symptoms and pain would return.

First cycle without BC came and went and no pain. Second cycle comes and still no pain. Then wham 3rd cycle comes and Its awful! The great thing about that third cycle was that I worked a double shift from 5pm-10pm and from 10pm-7am. I was stuck at work in the worst pain I had felt in nearly 5 years. Thankfully I came prepared with Vicodin and tampons. However I wasn’t mentally prepared for the amount of pain and fatigue I would be experiencing. Sharp shooting pains like knives in my vagina and rectum.  On top of my job being a fast food chain where it felt like H-E-L-L! There I am waking up in the hospital because I passed out.

At the hospital my ER doctor informs me that there is basically nothing they can do for me without insurance. They gave me IV fluids, pain meds and something for the nausea. The next morning I spent about 3 hours contacting clinic after clinic. NOTHING I could afford without insurance. I spoke a OBGYN at a local Planned Parenthood and she recommended BC but she told me that it would only postpone the damage of Endo. I decided instead of masking the effects I wanted to treat them. Well that didnt happen for a while.

I went through each monthly cycle for a year. Using pain killers, heating pads, hot baths and yoga. It worked for the most part except I could fee the Endo getting worse because each cycle my pain continued to increase. At 18 years old I joined the Marine corps. Yep I know I know….at 105 pounds and 5’3″ I..ME..SHE joined the Marines? Basic training came and I got the best cycles ever with  no medicine. I don’t know if it was the stress, exercise or diet of no sugar and high fiber that did it but I was extremely thankful!

3 moths later I am back home because of a lovely thyroid nodule(we will discuss this later) my OBGYN found during a exam. Turns out thyroid nodules aren’t allowed in the Marines. Once I am home I notice my cycles took a bit longer to return to the once excruciating episodes. But when they did the came back to kick my butt. I started experiencing a pulling and ripping sensation in my lower left side. It felt as if a little devil  was running around in my lady bits causing havoc to its liking. I couldn’t take it and back to the ER I went. Same ole same ole…still nothing other than pain killers and IV fluids.

This continued right up until now that I am 24 years old. I now have insurance through my county hospital Grady because I am unemployed for nearly 2 years. If anyone is familiar with Grady you will know it’s hell to get an appointment. If its a specialty like a OBGYN or Endocrinology you have to get a referral from your Primary Care doctor. So in December of 2012 I called for an appointment to see my primary care doc…..March 23, 2013 is the date I got. Who has to wait 3 months to see a primary care doc? Then I would have to wait another 2-3 weeks for my OBGYN appointment IF they give me the referral. What???

That just wasn’t going to work for me so everyday I called the OBGYN asking for any chance to see a doctor without a referral. FINALLY a few days later a nurse tells me the Nurse Practitioner is new and could use experience with a Endo patient. Okay great.

So, yep I got in to see someone at the OBGYN clinic without having to wait 4 more months. That’s where my journey starts. I am excited to start posting about the actual answers I received after that first appointment.

Ladies PLEASE make sure you never take a no without pushing forward. Take control of your own medical journey. ❤

xoxoxo

Sincerely,

This Endo Girl

How Endo & I met: Part I

Hello World! My name is LaLa and I am 24 years old. I live in Atlanta, GA where I was born and raised. I grew up with a big sister and a big brother. Yep that means I am the baby! I had a rather normal life grown up playing outside with siblings and friends. We played silly games like bust stop and hide and seek.

In general my childhood was the best. Up until I turned 11 years old. That’s where my life got truly difficult. I find it hard to say, well type that. I mean what real problem could an 11 year old child complain about LOL. Well at 11 I got what Mother Nature must have thought to be a cruel joke. I got my menstrual cycle. Yes I know it’s a girl’s destiny to “become a woman” however I am sure extreme pain and depression wasn’t meant to go along with it.

My first cycle came in the middle of the night when my parents were sleeping. I remember awaking to such terrible pain that I thought I was dying. I literally rolled out of bed onto the floor in a ball. I couldn’t stand and I didn’t know how I would reach the bathroom. My parent’s room was just down the hall but for me that seemed so far. After falling a few steps I managed to make it to my mom’s side of the bed. I grossly showed her my undies and cried out “mama something is wrong”. She quickly sat up and turned on the bedside lamp and replied “Chile, that’s just your period. It happens to all women”. I remember being so confused yet calm. I took an aspirin and got back into bed.

The next morning I awoke once again in terrible pain. This time with the lovely nausea, vomiting, diarrhea and fatigue. I begged my mom and dad to take me to the ER. Instead my dad insisted I just had normal period cramps. I remember thinking to myself “he’s not a woman, how does he know what cramps are like”. Yet still I sat there in pain. Monday morning came around and I missed school. My mom went and purchased me a heating pad, Tylenol and Gatorade. I felt a lot better laying with the heating pad but I knew it still wouldn’t solve it.

A few more months like that came and went. Each month I seemed to be in more and more pain. This time bleeding more and more and getting severely dehydrated. Finally my mom decided something wasn’t right and took me to the ER. I sat in the waiting room for about 2 hours before being called back to triage…blood pressure, weight and pain level. Then off to wait it the waiting room for another 45 minutes. I remember my mother getting really upset that they were calling people back before me that had colds and headaches. But there I was pale, dehydrated and short of breath just waiting.

Finally a nurse called out to me “Ms. Magitt, we are ready for you. Come on back”. My mother picked me up and took me back. When I got back my nurse gave me fluids and Phenergan as well as Morphine for the pain. I waited about 30 minutes for my Dr. to come in. In walks a man that looked like he could care less about my pain. He looks at me one good time and says “let’s get her a pelvic”. My mother wasn’t happy that they wanted to do a pelvic exam on an 11 year old that was already in pain. The nurse explained it was the best way to make sure I was ok. Pelvic pain concludes that nothing was wrong.

A week passed after being in the ER and my mom got me a OBGYN. I meet her for the first time and told her my symptoms. Her first words “I think you have Endometriosis, baby”! She told us she didn’t want to do surgery-Laparoscopy since I was so young. Instead she prescribed me Vicodin, Phenergan and Seasonal birth control. Instead of 12 excruciating cycles a year I now had 4 relatively pain free cycles. I really loved my life at that point. I could go to my friends’ parties or to the movies. I didn’t have to miss out on everyday activities…I felt normal. Right up until 17 years old when I lost my medical insurance. That’s where my life went right back to the day Mother Nature played that awful trick on me for the first time. More pain, nausea, diarrhea, constipation and more.

The next blog post will pick up right a 17 years old where my Endo came back with a terrible vengeance. To bite me in the ovaries!

I appreciate you all taking the time to read this HUGE post! ❤

-LaLa

So what exactly is Endometriosis?

For those of you that do not have Endo or may not know what it is. This post will help you to understand it a bit better.

What is Endometriosis?

Endometriosis is a painful, chronic disease which affects up to 6.3 million women & girls in the U.S. 1 million in Canada & millions more worldwide. Endometriosis occurs when the lining of the uterus-called the Endometrium implants or grows outside of the uterus. Endometrium implants have been known to grow in the abdomen on the ovaries, fallopian tubes, & ligaments that support the uterus; which is the area between the vagina & rectum; the outer surface of the uterus; & the lining of the pelvic cavity. Other sites for these endometrial growths may include the bladder, bowel, vagina, cervix, vulva, & in abdominal surgical scars. Less commonly they are also found in the lungs, arm, thigh, and other locations like the brain.

These implants or growths follow the same pattern as the menstrual cycle. Each month building up then shedding just like that of the uterus lining when no egg is fertilized. Except these implants have no way to exit through the cervix. This causes extreme pain, inflammation as well as internal bleeding.

This process can and do cause: infertility, scar tissue formation or adhesions, bladder and bowel problems.

What are the symptoms of Endometriosis?

  • Pain before & during periods
  • Pain with sex
  • Fatigue
  • Infertility
  • Painful urination during menstruation
  • Painful bowel movements during menstruation
  • Other Gastrointestinal upsets such as diarrhea, nausea & constipation

In addition, many women with Endometriosis suffer from:

  • Allergies

  • Chemical sensitivities

  • Frequent yeast infections

How is Endometriosis Diagnosed?

There is no way to diagnose suspected Endometriosis without having what is called a laparoscopy. This is a minor surgical procedure done under anesthesia. A laparoscopy tells a doctor of the location, size & severity of the Endometrium growths.  After diagnoses it allows the patient as well as the doctor to better determine proper treatment going forward.

What treatments are there for Endometriosis?

Treatment options for Endometriosis range from little as diet and exercise, to pain management with medications, birth control as well as excision surgery like that of laparoscopy surgeries.

Each option is up to the patient & her physician to decide.

What causes Endometriosis?

We do not know the exact causes of Endometriosis, but there are several theories. Researchers do know that the hormone estrogen, which is at its highest levels during childbearing years, is likely to contribute to Endometriosis. Other possible causes of Endometriosis include:

  • Retrograde menstruation – when endometrial tissue is deposited in strange locations because of menstrual flow that backs up into the fallopian tubes and abdominal cavity.
  • Ceolomic metaplasia – the areas lining the pelvic organs have certain cells that can grow into other forms of tissue such as endometrial cells.
  • Surgery – endometrial tissues are directly transferred outside the uterus during episiotomy or Cesarean section.
  • Blood and lymph systems – endometrial cells travel via the bloodstream or lymphatic system to distant places such as the brain and other places far from the pelvis.
  • Immune system problems – cause the body to not recognize and destroy cells or tissue that is growing where it should not be.

I hope this helps you to better understand Endometriosis. If you have any questions or concerns please leave a comment below!

Welcome to This Endo Girl!

Hi world. My name is Shekeita but my Endo friends call me LaLa…its short for my middle name Latrice. I am 24 years old & I currently live in Atlanta, GA where I was born & raised. I have a wonderful partner, Christina that I love & adore. We have a fur baby Izzy that we raise together. I am one of the lucky ones to have a partner that understands how much Endo-Endometriosis can affect my life. However that doesn’t always make life with Endo any easier.

I am excited to use this blog as a way to express my happiness, sadness or any other thing I am feeling daily. I also hope to reach other Endo Girls out there that may not have anyone to talk to. I am praying that this blog becomes a safe place to ask questions or find helpful information.

Each week I will be keeping this blog updated with my medical journey with Endo. As well as my medical journey with thyroid nodules. I am going to be posting about feminine care products that help to minimize Endo pain. I may also post diet & exercise regimens that I am trying & I feel are useful. I am even thinking of posting about how Endo affects relationships whether it be with your partner, boyfriend, or husband.

If you have any questions or suggestions for blog posts feel free to leave a comment. Please email me at lala.life.with.endo@gmail.com if you have any further questions.